Technically, I suppose this is his second major surgery....but the first one I'm around for. He had a g-tube placed while in NICU and also had an intestinal twist fixed.
Anyway, we arrived at Ronald McDonal House this afternoon. WOW!! What a blessing this is. I had stayed at the RMH in Long Beach but this is even better! I am amazed at the accommodations available to families. There's the typical room, family areas, nightly dinner proved, and there is a huge pantry, coffee & snack bar, a pop machine with $.25 cokes (can't even find the cheapy walmart brand anymore for that!), and shuttle service back and for to Children's Mercy (anytime day or night).
We have an arrival time of 6:30am in the morning so it is nice to be able to relax a bit this evening and not have to drive all the way here in the morning!!! I have been doing fairly well at not thinking much about this surgery. It is the first cranial surgery - posterior expansion and we will have distractors placed.
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| Home Away From Home |
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| Dining Area |
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| Pantry that I, and many large families, would love to have!! |
